Page 126 - Health Literacy, eHealth, and Communication: Putting the Consumer First: Workshop Summary

Health Literacy, eHealth, and Communication: Putting the Consumer First: Workshop Summary

APPenDiX C

Journal of Medical internet Research. He also authored the California Health-
Care Foundation Issue Brief, “Lost in Translation: Consumer Health Infor-
mation in an Interoperable World,” which examines what could be done
to better integrate consumer health information standards into PHRs and
the national health information network framework.
For 5 years, Dr. Seidman volunteered as president of the board of
directors for Micah House, a transitional house in Washington, DC, for
homeless women recovering from substance abuse. Seidman uses distance
running as his own therapy of sorts, and has completed 27 marathons.

Cynthia Solomon is CEO of Access Strategies Inc, a health care consulting
firm located in Sonoma, California. Her company specializes in research,
development and implementation of special projects which focus on sys-
tems of care for at-risk populations including the indigent, chronically
ill and uninsured. She has over 25 years experience as a health systems
consultant in the private and public health sectors. Ms. Solomon is a co-
founder of MiVia, an electronic personal health record for migrant and
seasonal workers developed for a nonprofit coalition of health and ser-
vice providers serving agricultural workers. In October 2005, MiVia was
highlighted in the Presidential Commission Report on Systemic Interop-
erability, submitted to Congress (www.endingthedocumentgame.gov).
MiVia is currently being implemented in California, Oregon, and two
rural migrant health networks in New York.
Ms. Solomon’s company launched the FollowMe™ PHR in 2000.
The FollowMe platform has been recognized as a pioneer in the field of
PHRs and has been featured in several national publications including
the economist, Washington Post, Wall Street Journal, L.A. times, Medical
ethics, and For the Record. She is a member of the Markle Foundation
Connecting for Health Workgroup and participated in developing the rec-
ommendations and standards for interoperability between electronic
health records (EHRs) and PHRs which was submitted to the Office of the
National Coordinator for Health Information Technology (HHS) in July
2004. Ms. Solomon has presented testimony on PHR technology to the
NCVHS NHII workgroup in April 2005. She has also presented testimony
to the Consumer Empowerment Workgroup–American Health Informa-
tion Community on the role of Government in PHR technology.
As the mother of a child diagnosed with hydrocephalus she is an
experienced and committed health advocate and cofounder of the Hydro-
cephalus Association, a national support and advocacy organization for
families and individuals living with hydrocephalus. Her son Alex has had
multiple procedures and hospitalizations and it was her frustration with
trying to manage and coordinate his complex medical information that
led her to developing a Web-based PHR in 1999.

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