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Health Literacy, eHealth, and Communication: Putting the Consumer First: Workshop Summary


            PAneL

            policies  regarding  personal  health  information  and  the  term  “network
            PHRs.” The technology is fast developing to the point where, given stan-
            dards, one should be able to take a PHR from one system to another and
            share information.
               In  terms  of  usability  in  separate  locations,  MiVIA  has  been  imple-
            mented not only on the West Coast but also in New York. Two networks
            that have migrant streams that go from New York to Florida are enrolling
            the members in New York and then having the clinics in Florida connect
            with those in New York.
               But the most important things, Solomon continued, are first to edu-
            cate, then to engage in outreach, and finally to proceed with implemen-
            tation. One needs to educate the public and the provider communities
            about how PHR and technology can help. Next, outreach with communi-
            ties and providers must be undertaken. Finally, one must implement the
            program.
               One audience member said that, given the discussion, it seems correct
            to say that there is no standard PHR design or dominant design in the
            country. Is there a standard interface with electronic medical records?
               Solomon  responded  that  a  standard  interface  is  emerging.  Just  as
            CCHIT  (Certification  Commission  for  Healthcare  Information  Technol-
                                                                9
            ogy) offers certification for electronic medical records, HL7  will soon be
            releasing recommendations for interfaces around certain parts of the PHR.
            Standardization could happen, although it has not yet been accomplished.
            Information can be downloaded from the HL7 website at www.hl7.org.
               Gauthier added that there are definitely opportunities for standard-
            izing personal health records, but there will always be a need for seg-
            mentation. For example, a patient could take an activation quiz to find
            out where he or she is on the health literacy scale and then be prescribed
            a certain type of PHR based on how health-literate that patient is. As the
            patient progresses in health literacy, he or she could easily move informa-
            tion to a different PHR. That is where standards would be key.
               Solomon  was  asked  whether  she  thought  that  at  some  point  any
            commercial  application  of  EHR  in  the  country  would  be  able  to  feed
            MiVIA data. Absolutely, Solomon responded. MiVIA is already working
            with two electronic medical record companies and with other PHRs to
            accomplish this.
               One questioner asked whether, within the MiVIA PHR design, there
            are any standards for the way information is displayed, for the level or



             9   “Health Level Seven is one of several American National Standards Institute (ANSI)-
            accredited Standards Developing Organizations (SDOs) operating in the healthcare arena.
            Health Level Seven’s domain is clinical and administrative data” (Health Level Seven Inc.,
            2008).





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