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Appendix H: Evidence tables
What information and support should be given to parents/carers of babies with neonatal hyperbilirubinaemia?
Author: Study Type: Four focus groups Barriers - communication Solutions - communication MD = physician
Salem-Schatz S Focus group study 1 for physicians (n = 9) Conflicting advice from HCP’s on Improve communication between HCP - MD RN = Nurse
1 for nurses (n = 9) readiness for discharge - MD Notify community HCP by email when baby P = Parent
Year: Evidence Level: 2 for parents/carers (n = 14) Communication gaps between handover born – MD, RN
2004 III from hospital to community - MD, RN Provide easy-access (on-line or form parent)
Aim: Key information missing MD, RN for community HCP for lab results – MD, RN
Country: To identify barriers to timely follow- Give parents/carers ‘early warning signs’ to
st
USA up of hyperbilirubinaemia in 1 report – MD, P
7 days Continued contact from birth hospital to
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ID: parent/carer – P
Focus had between 7 and 9 Barriers – systems and process
participants and lasted for between Delays in outpatient bilirubin testing and Solutions – systems and process
90 and 120 minutes reporting - MD, RN Home visit by a physician – P
Barrier to home visits – MD, RN, P Encourage home visits, RN, P
Choose paediatrician before discharge/book
Barriers to office visits in week 1 – MD,
st
Content was the importance of 1 RN, P appointment before discharge – MD
week newborn follow-up and key Separate visiting toom for well children – P
questions relating to physican and More flexible visiting time – P
parent/carer experiences Community HCP to visit pre-discharge – RN,
P
Ensure quick easy access to labs – MD, RN
Solutions – systems and process
Barriers – systems and process Increase professional awareness – MD, RN
Shorter hospital stays leave less time for Parental education through continuum of care –
parent education –RN MD, RN, P
Clinicians may be reluctant to educate Support groups for new and expectant parents
about hyperbilirubinaemia prenatally – – MD, RN
MD, RN
Poor understanding by clinicians of risks of
near-terms – MD
Lack of clinician awareness of the
recommendations of early follow-up visits
– MD
HCP recommendations forgotten once
parent is home – P
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